Johanna Leibl

15 years old - France

Hello, my name is Johanna, I am 15 and a half years old. I was infected with COVID-19 on September 28, 2020 and since then I have never recovered...I started with very severe fatigue and I slept 20 hours a day. The doctors didn't understand what was happening to me and at first they thought I was depressed. Then they understood that it was not that but something else. They kept looking. During this time, I was out of school. I had to stop all my activities because I couldn't do it anymore.

Then, the summer holidays pass, I remain very tired and stay most of the time at the campsite to sleep. Back to school is coming, and I'm excited to go because I haven't been there for 6 months and I want to get back to a normal life. I go there but after three days, I can't go anymore because I'm too tired. So this year I only did 3 of the 8 subjects. In the fall, I had frostbite which hurt me a lot and I couldn't put my shoes on anymore. My toe was purple, then blue, then black, then red... I had started activities again this year but had to stop again because I couldn't do them. I was hospitalized in rehabilitation for 2 weeks during the Easter holidays. It helped me because it gave me a rhythm of life that did me a lot of good. But I couldn't keep up that pace when I got back home. I went to the museum with the hospital but I ended up in a wheelchair because after half an hour standing and walking, I couldn't hold on anymore. I am hospitalized again for a month on May 30. I also have cognitive problems, I can not concentrate more than 15 minutes, I have problems with memory and learning ... All this time, I spent a lot of consideration medical until they understand that I had a long term Covid. Sorry for the mistakes, English is not my first language.